Privacy Policy

Last Updated: 1 October 2026

MAPPA — MSA & Atypical Parkinsonian Professionals Association (“MAPPA,” “we,” “us,” or “our”) is committed to protecting your privacy.

This Privacy Policy explains how MAPPA collects, uses, stores, and discloses information when you visit https://joinmappa.org/, apply for membership, participate in MAPPA programs, communicate with us, or otherwise interact with our website and services.

MAPPA is a free international professional association for medical, healthcare, research, allied-health, and other qualified professionals and trainees interested in Multiple System Atrophy (MSA), atypical parkinsonian disorders, movement disorders, related research, education, and professional collaboration.

Information We Collect

We may collect information that you voluntarily provide when you:

  • apply for or maintain MAPPA membership;
  • contact MAPPA;
  • register for or participate in webinars, educational programs, conferences, or other activities;
  • express interest in professional development opportunities, grants, observerships, research collaborations, mentoring, or other MAPPA programs;
  • subscribe to MAPPA communications; or
  • otherwise interact with MAPPA through our website.

Depending on the activity, information may include:

  • name;
  • email address;
  • telephone number;
  • city, state, province, region, and country;
  • institution or organization;
  • professional credentials or degrees;
  • professional title;
  • professional role or specialty;
  • professional background;
  • areas of professional interest;
  • years of professional practice or research experience;
  • participation and professional-development preferences; and
  • other information you voluntarily provide through MAPPA forms or communications.

How We Use Your Information

MAPPA may use information we collect for purposes reasonably related to our mission and activities, including to:

  • process and administer MAPPA membership;
  • communicate with members and applicants;
  • provide information about professional education and development opportunities;
  • administer webinars, conferences, educational programs, and other activities;
  • provide information about professional development grants and international observership opportunities;
  • facilitate professional networking, mentoring, research collaboration, and educational activities;
  • understand the professional interests and needs of the MAPPA community;
  • improve our website, programs, resources, and services;
  • maintain website security and prevent misuse; and
  • comply with applicable legal requirements.

Professional Membership Information

Information submitted through a MAPPA membership or professional registration form may be used to evaluate and administer membership, understand professional interests, facilitate relevant MAPPA programs, and communicate with members about opportunities relevant to their professional interests.

MAPPA may use aggregated or de-identified information to better understand the professional community and support education, research, collaboration, professional development, and awareness activities.

Member Directory

MAPPA may develop a Professional Member Directory in the future to support professional networking and collaboration.

Participation in a future MAPPA Professional Member Directory will require the applicable consent indicated through the membership or other MAPPA registration process.

Unless you have provided the appropriate consent, MAPPA will not intentionally publish your personal information in a public member directory.

MAPPA Communications

If you choose to receive communications from MAPPA, we may send you information concerning:

  • membership;
  • professional education;
  • conferences and webinars;
  • grants and professional development opportunities;
  • observership opportunities;
  • research initiatives;
  • mentoring and professional collaboration; and
  • other MAPPA programs and activities.

You may unsubscribe from non-essential email communications at any time by following the unsubscribe instructions included in the relevant communication or by contacting MAPPA directly.

Sharing of Personal Information

MAPPA does not sell personal information to third parties.

We may share personal information with service providers when reasonably necessary to operate our website, administer membership and programs, send communications, manage registrations, provide technical services, or perform other services on MAPPA’s behalf.

Service providers are expected to use personal information only as necessary to provide the applicable services and as permitted by law.

MAPPA may also disclose personal information when reasonably necessary to:

  1. comply with a valid legal requirement;
  2. protect the rights, property, safety, or security of MAPPA, our website users, members, or others;
  3. investigate suspected fraud, misuse, security incidents, or violations of our policies; or
  4. respond to an emergency involving a physical threat to an individual.

Patient and Clinical Information

MAPPA membership and professional registration forms are not intended for the submission of identifiable patient or clinical information.

Please do not submit identifiable patient information, medical records, or other confidential patient information through MAPPA website forms, membership applications, or ordinary email communications.

Information Collected Automatically

When you visit our website, certain technical information may be collected automatically. This may include:

  • IP address;
  • browser type;
  • device type;
  • pages viewed;
  • referring pages;
  • search or navigation information;
  • date and time of access; and
  • other technical or statistical information.

We may use this information to operate and maintain the website, understand how visitors use our website, improve website functionality and content, maintain security, and investigate technical problems or misuse.

We may use aggregated or de-identified information for analytical and organizational purposes.

The source privacy policy similarly describes website logs, pages viewed, browsers and devices, referring pages, search terms, IP addresses, and related technical information as information that may be collected automatically.

Cookies

MAPPA may use cookies and similar technologies to support website functionality, remember preferences, understand how visitors use the website, and improve website performance.

Cookies may be used by MAPPA or by third-party services integrated into the website.

You may configure your browser to refuse or restrict cookies. Disabling certain cookies may affect some website functionality.

IP Addresses

MAPPA may collect IP addresses for website administration, security, troubleshooting, analytics, and auditing purposes.

We generally do not use IP addresses to identify individual users except when reasonably necessary to protect the website, investigate suspected misuse, comply with legal obligations, or maintain security.

Information Security

MAPPA takes reasonable administrative, technical, and organizational measures designed to protect personal information against unauthorized access, loss, misuse, alteration, or disclosure.

Where appropriate, our website uses SSL/TLS encryption to help protect information transmitted between your device and our website.

However, no method of transmission over the Internet or electronic storage system can be guaranteed to be completely secure.

Retention of Information

MAPPA may retain personal information for as long as reasonably necessary to administer membership, communications, programs, professional opportunities, recordkeeping, security, and legal obligations.

Retention periods may vary depending on the type of information and the purpose for which it was collected.

External Links

Our website may contain links to websites, organizations, or services operated by third parties.

MAPPA is not responsible for the content, security, privacy practices, or policies of third-party websites.

The inclusion of a link does not necessarily constitute an endorsement of the linked website, service, organization, or its policies.

We encourage you to review the privacy policy of each third-party website you visit.

Your Privacy Choices and Requests

Depending on applicable law, you may have rights concerning the personal information MAPPA holds about you, including the right to request access to, correction of, or deletion of certain information.

You may also request that MAPPA stop sending non-essential communications to you.

For privacy-related requests, please contact MAPPA using the contact information published on https://joinmappa.org/.

Changes to This Privacy Policy

MAPPA may update this Privacy Policy from time to time to reflect changes in our website, programs, practices, or legal requirements.

When we make changes, we will post the updated Privacy Policy on this page and revise the “Last Updated” date.

Contact Us

For questions about this Privacy Policy, your personal information, or privacy-related requests, please contact:

MAPPA — MSA & Atypical Parkinsonian Professionals Association
Website: https://joinmappa.org/